Learnings and Benefits from Co-Researching: Views of Advisors with Intellectual Disabilities

Abstract

The Convention on the Rights of Persons with Disabilities recognizes the value of the contributions these individuals can make to well-being and diversity, and thus the active role they must play in research on their lives. This study aims to investigate the perspectives of people with intellectual disabilities who were part of an Advisory Committee that has been collaborating in research for 9 years on what they learnt and what the research experience meant to them. Their opinions were analysed through individual interviews, focus groups, and the revision of more than 297 written and visual documents produced during the last 9 years. Participants reported significant learning related to the research process, as well as socio-personal learning. Moreover, they reported the increase of their sense of belonging to a socially valued group, enrichment of their social networks and a gain in personal well-being. Beyond contributing to the conduction of research based on the people’s needs, the involvement of people with intellectual disabilities in dissemination actions addressed to the professional field and social policies is deemed as a necessary action in order to make their role in social change more visible