Attending pediatric acutely ill patients at home: families' socioeconomic characterization, expectations, and experiences
dc.contributor.author
dc.date.accessioned
2022-11-30T13:12:57Z
dc.date.available
2022-11-30T13:12:57Z
dc.date.issued
2022-11-24
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dc.description.abstract
Background SJD a Casa is an acute pediatric hospital-at-home program that was initiated in 2019. For a thorough understanding of acute pediatric homecare programs, an analysis of all related factors, including the medical, social, and economic aspects as well as the family's experience, is essential. However, no previous study has attempted a comprehensive evaluation of this topic in relation to a complex program such as ours (in terms of the diseases and treatments offered). In this study, we aimed to finely characterize the population that opts for pediatric homecare programs and obtain a thorough understanding of the families' needs, which will improve our understanding of the program and potentially reveal possible deficiencies. Methods This prospective quantitative and qualitative study involved collection of ordinal data as well as statements made by the caregivers of patients undergoing homecare. A total of 372/532 families were asked to answer two independent questionnaires (preadmission and postadmission) that evaluated their socioeconomic characteristics; expectations and experiences; and factors influencing the preference for homecare. The results were presented as frequencies and comparisons (Fisher's exact test). Results The families had an adequate social network and a less-than-expected workload, and most families responded that they would have repeated the experience despite the workload. The expectations regarding the caregiver's well-being at home were better than the actual situation, since some caregivers experienced anxiety or fear. The rating for homecare was better than that for the inpatient care offered before the homecare transfer. Conclusions Families included in the program were content with the homecare program and mostly responded that they would repeat the experience if needed. Although the duration of the program was short-term, some caregivers may experience symptoms of burnout like anxiety, which should be taken into consideration. Despite its limitations, this study offers the possibility of improving our service portfolio by focusing on vulnerable families' access to the program and the caregiver's risk of burnout
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application/pdf
dc.language.iso
eng
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Reproducció digital del document publicat a: https://doi.org/10.1186/s12887-022-03724-1
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Bmc Pediatrics, 2022, vol. 22, art.núm. 679
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Articles publicats (D-IMAE)
dc.rights
Reconeixement 4.0 Internacional
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dc.source
Batlle, Astrid Thió i Fernández de Henestrosa, Santiago Boada, Imma López Mateo, Sandra Moya, Isabel Fernández, José Carlos Fernández de Sevilla, Mariona García García, Juan José 2022 Attending pediatric acutely ill patients at home: families' socioeconomic characterization, expectations, and experiences Bmc Pediatrics 22 art.núm. 679
dc.subject
dc.title
Attending pediatric acutely ill patients at home: families' socioeconomic characterization, expectations, and experiences
dc.type
info:eu-repo/semantics/article
dc.rights.accessRights
info:eu-repo/semantics/openAccess
dc.type.version
info:eu-repo/semantics/publishedVersion
dc.identifier.doi
dc.identifier.idgrec
035815
dc.type.peerreviewed
peer-reviewed
dc.identifier.eissn
1471-2431