Background:
The ageing of the population in associated with the increase of the evalence of
dementia, such as Alzheimer's disease. The gradual, disabling and irreversible
character of the Alzheimer's disease causes dependence and, there more, it forces the
appearance of informal caregivers to provide for the needs of the patient. The evolution
of the disease increases the care's requirements and the caregiver is at risk for
suffering disorders, mainly in psychological and mental health, affecting their quality of
life in key factors such as: perceived social support, overload and depression. With the
creation of the program "My relative has Alzheimer and now, what happens?", I intend
to give support, and interdisciplinary care that often lacks in informal main caregivers.
The main objective to be achieved is:
Evaluate the educational program "My relative has Alzheimer an now, what happens?",
witch consists of psychoeducational interventions, alternatives to conventional ones,
aimed at the informal caregivers of patients with Alzheimer, by professionals of various
disciplines, while working on different aspects that positively affects their quality of life,
with regards to the perception of social support, overload and the risk of depression.
Material and Methods:
This project is a clinical trial that will take place over a period of two years (2018-2020)
with main caregivers of patients diagnosed with Alzheimer assisted at the CAP, and in
the main old people's homes and day centers in Banyoles.
In the first place, the choice of the relatives will be done deliberately of cover patients
affected in the three different stages, and in the second place, they will be chosen at
random amongst those who meet the inclusion criteria and to determine if they belong
to the control group or to the intervention group.
There will only be a follow up of the control group, and the education program "My
relative has Alzheimer and now, what happens?" will be implemented to the
intervention group in order to decrease the impact of the caregiver's quality of life.
There are two groups of variables: relating to caregivers (both demographic and
specific study of the level of overload, depression and support help) and the ones
relating to the Alzheimer patient (stage of the disease and level of the patient's
dependence).
All variables are collected through a specialized survey, and the results will be analyze
d with the statistical program SPSS.
As a conclusion, it is estimated that the clinical practice results will reaffirm the
importance of the systematic implementation of the program "My relative has Alzheimer
and now, what happens?" to be able to improve the quality of life of the caregivers of
pople with Alzheimer
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